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Cathryn Dianne Achilles
Hi, my name is Cathryn.
I am
years old. I have Ataxia-telangiectasia. If you or someone you know has AT, I would like to hear from you. Please send me an e-mail. I was diagnosed in May 2000 after a seven year search to find out why I wasn't growing. You can find out more about AT through the AT Children's Project.
I am in 10th grade, I'm schooled at home where I use a computer, books on CD, and a lot of help from my amazing Mom. I am an active participant in my church youth group. I love to ride horses, write and illustrate my own stories, and sew quilts with help from my sewing teacher. My favorite thing to do with my quilts is give them away -- especially to people in need. I also enjoy watching a DVD when I get a chance! I am dependent on a wheel chair, a feeding pump, numerous therapies, and adaptive devices for my computer, but I try to keep a positive outlook on life and my mom says that I've been an inspiration to many. Please pray for my parents as they care for me.
I have received Jesus as my Savior, and so even with AT, I want to serve Him. I have joy, peace, and I am not really afraid of the
future. I know I will go to heaven to be with Him. I pray that you will know Jesus too.
Love,
Cathryn
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This is me and my dad after I got baptized. (May
2000)
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A note from Cathryn's Dad:
AT is a debilitating genetic disorder for which
there is no cure. Children with AT are affected in a startling variety of
ways. They experience a growing loss of voluntary motor skills.
Many are eventually dependent on wheelchairs and other mobility
aids. Their immune systems are usually compromised, and they often suffer
from respiratory infections. They have a one-in-three chance of
developing cancer and are especially susceptible to leukemia and lymphoma.
From an earthly perspective, things look bleak.
It's a good thing we are "not of this world." We have total peace,
even as Cathryn's abilities and immune system decline. If you want to
know more about this peace, feel free to contact me. I would be more than
happy to share with you the confidence we have through our relationship with
Jesus Christ.
In His love,
Jim
Achilles
jim.achilles@gmail.com
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Time-Line:
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1991 -- Cathryn is born.
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1992 -- Testing begins to find the
reason that Cathryn is not growing properly.
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1993 -- Cathryn is diagnosed as a
"Failure to Thrive."
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1993 - 2000 -- Regular visits to doctors
and specialists fail to make a proper diagnosis.
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9-1999 -- Cathryn's parents notice a
more dramatic and alarming decline in Cathryn's abilities.
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5-2000 -- Through Stanford University,
Cathryn is diagnosed with AT.
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9-2000 -- Cathryn enjoys a shopping
spree courtesy of the Bay Area Make A Wish Foundation.
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10-2000 -- Cathryn spends three days at
the AT Clinic at Johns Hopkins in Baltimore (then tours Washington DC with her
family!)
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12-2000 -- Cathryn begins using a walker
to help her get around. Has a G-tube surgically placed in order to get liquids
more safely, after learning her swallowing was greatly hampered by loss of
muscle control (i.e. no more liquids by mouth).
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4-2001 -- The Achilles family's van is
renovated to accomodate Cathryn's future wheelchair.
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7-2001 -- Cathryn's wheelchair arrives.
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