The Congenital Myopathy Site--Guestbook

Guestbook

Please let me know what you thought of my site. I am especially interested in communicating with other parents of children with myopathies, and with persons with myopathies. Feel free to ask any questions you might have, and if I can't answer them I will try to find other resources for you. I would also appreciate any comments or suggestions you might have. Feel free to complete as much or as little of the requested information as you wish.

Name:
E-Mail Address:
Country of Residence:
State (if US):

How did you find this site? (Check all that apply)
Search Engine
Recommendation of a friend
Link from another site
From which site?
Other

Do you have, or do you know anyone with, a myopathy?
Yes (please answer A and B below)
No

A. Who?
--check all which apply
self
spouse
child
parent
grandparent
other relative
friend

B. What type?
--check all which apply
Central Core Disease
Congenital Fiber-Type
Disproportion
Minicore/Multicore Myopathy
Myotubular Myopathy
Nemaline Myopathy
Other/Non-specific
No specific diagnosis

Please let me know if you have any questions, comments, or suggestions. I would appreciate any thoughts you might have.

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The Congenital Myopathy Site
stressy@charter.net